This post originally appeared on the Project HealthDesign Blog.
Libby Dowdall, Communications Coordinator, Project HealthDesign National Program Office
Following the Dec. 3 PHR Roundtable, hosted by the Office of the National Coordinator for Health Information Technology (ONC), Project HealthDesign submitted public comments regarding the future of personal health records (PHRs).
Project HealthDesign Director Patricia Flatley Brennan, R.N., Ph.D., commented on the inclusion of patient-generated observations of daily living (ODLs) in PHRs and highlighted the shift toward independent personal health applications (PHAs) that run on top of PHRs.
Walter Sujansky and Sam Faus of Sujansky & Associates, technical partners to the project, noted patients’ desire to assign to family, friends and clinicians customized levels of access to PHRs. They also provided information about the open-source Project HealthDesign Common Platform as evidence of this task’s feasibility.
Principal Investigators Anind Dey, Ph.D., Katherine Kim, M.P.H., M.B.A. and Gillian Hayes, Ph.D., commented on patient expectations in regard to PHR privacy, security, customization of access and ease of use.
Watch videos of the ONC PHR Panel sessions (see Web Archive section).